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Stories from the people who face rare disease firsthand.
[On the Road to Meet] “Designing the System Together as True Partners” — Changdeok Ji, Rare Disease Business Architect (Part 2)2026. 08. 26- [On the Road to Meet] “Expanding the Market to Speed Up Diagnosis” — Changdeok Ji, Rare Disease Business Architect (Part 1)2026. 08. 26
- Meet the Clinician ② Not Missing It — Five Fabry Patients in One Family2026. 07. 29
- Meet the Clinician ① From Ugly Duckling to True Partner2026. 07. 29
[Clinical Insight] “Rarely Diagnosed, Not Rare” – An Interview with Dr. Dmytro Tokariev2026. 06. 26
“El síndrome de Usher está más cerca de lo que crees” —Una conversación con el Dr. Juan Carlos Zenteno Ruíz2026. 04. 07