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Stories from the people who face rare disease firsthand.
“Usher Syndrome Is Closer Than You Think” — A Conversation with Dr. Juan Carlos Zenteno Ruíz2026. 04. 07
Fabry disease: Interview with Dr. Ji-Hee Kim2023. 02. 22
Eye rare disease: Interview with Dr. Jinu Han2022. 10. 26
Interview with Dr. Lock Hock Ngu, doctor with medical genetics2022. 09. 13
Cardiac genetic testing, Fabry disease: Interview with Dr. Geu Ru Hong2022. 08. 05